Today, I got the best news I've heard in over 8 months !
Got a call from the hospital, asking me to go in for the day on Friday, to have the first of two infusions of the new meds !
Second session is on May 3rd.
This started last September, when I had the first infusion, which really did work wonders and greatly improved movement, articulation and quality of life, whilst reducing pain and discomfort by a huge margin. Unfortunately, due to being bitten by a spider (!!), at the time the second infusion could not go ahead, as there was a great risk of the meds slowing-down the healing process, when the bite, already infected and swollen, could abscess into the bone of my ankle, so I had to wait until it was completely healed.
This took until December, but further delays occurred, due to faulty blood tests, and further test results being lost !
So after just over eight months without meds, apart from pain-killers, I'm now really looking forward to having a 'drip' stuck in my arm for a day, and the resulting benefits which, after the second infusion, should make a huge difference, and last around a year.
Lock up your daughters !!!